In a heartwarming move, a Harlow-based business has announced its official charity partnership with a vital UK organisation dedicated to supporting families affected by leukodystrophy, a rare genetic disorder impacting the brain and spinal cord. This partnership is especially meaningful for the business, as it honours Lily, the two-year-old daughter of their Head of Product, who was diagnosed with leukodystrophy in August 2024.
The Head of Product expressed her gratitude, stating, “The charity has become a lifeline for our family since Lily’s diagnosis. I’m incredibly proud that our business is supporting a charity so close to my heart.” The business is committed to raising awareness and funds for the charity, ensuring families like Lily’s receive the support they need.
The partnership kicked off with a family-fun day at the business’s new Harlow offices, raising £1,200. Future initiatives include a Three Peaks Challenge, a 24-hour darts marathon, and ongoing fundraising through product sales. These efforts aim to bolster the charity’s mission to support families and advance research for better diagnosis and treatment.
The Managing Director emphasised the importance of this partnership, saying, “As a team, we’re determined to raise as much awareness and money as possible for this vital cause.” The charity’s CEO expressed her gratitude, highlighting the significant impact the business’s support will have on the leukodystrophy community.
The charity remains the sole UK organisation dedicated to all leukodystrophies, offering expert guidance and advocacy. To contribute to this noble cause, visit the charity’s donation page.
Image: Unsplash
